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Showing posts from April, 2016

Dear Jeremy Hunt - The Difference a Week Makes

I'm sorry I haven't posted here regularly Jeremy, I'm sure you've been wondering where I got to. Last week, for the first time since December, Dave and I had some good news. Last Friday, we went to see Dave's Impossibly Elegant Oncologist. 

Have I told you about Dave's oncologist? He was the first one to give it to us straight. No hedging, no soft words. Bad news, delivered gently. You have no idea how much I adore this man. He is gentle, straightforward and has a very cheeky sense of humour. We trust him. He is also the first consultant I have ever seen borrow a pen from a nurse and go out of his way to return it! Jeremy, would you ever return an underling's pen? Their normal, note-taking biro? I've had to rifle through my manager's desk many-a-time to retrieve my pens that they'd absent-mindedly picked up when hovering over me and walked off with. You have no idea how much that used to piss me off. 

Anyway, Dave's Impossibly Elegant Oncologi…

Dear Jeremy Hunt - Service Users

Is that what we are these days? It seems we're no longer patients. Your language is all hip, management speak, about accessing a service that's designed for us users. Well, here's the thing, successful entrepreneur Sir Richard Branson (you might have heard about him), is credited with saying "look after your staff well and they in turn, look after your customers." 

These two NHS customers service users are currently a little bit knackered. Me, because 3 o'clock in the morning is prime worrying time, and Dave....well Dave because he's going through the new treatment regime and yes, it's as hard as he was warned. Scan tomorrow morning to see how everything is going and I think it's more important for our morale, than for the actual clinical information. We are living from treatment to treatment and trying to anticipate good and down periods where we can do stuff. Fun stuff. 

Spring has sprung and it's truly beautiful here. Living in this part of t…